New Development….. Two new Diagnoses

We took Jonah to a pediatric neurologist yesterday at Children’s Hospital of Philadelphia. The best of the best. Here’s why.

Since Jonah was about 18 months old, he’s been having vomiting episodes. They come every 2 – 4 months. They always happen first thing in the morning, accompanied by stomach cramps, sometimes a headache and complete lethargy, like he can’t walk. They’ve always seemed strange, like they weren’t a regular stomach bug. They’d last 6-12 hours and then all of the sudden he’d be famished and act like nothing ever happened. Weird.

So for a while his regular pediatrician thought it was hypoglycemia and he was having extreme sugar crashes. I took him into the pediatrician last month while he was having one so that they could see it. We saw a different pediatrician in the practice and she suggested it may be either abdominal migraines or cyclic vomiting and referred us to a neurologist. She also said he was extremely undernourished 😦 That was at the lowest point of his feeding issues, which have improved, thank God.

Anyway, so we go to the neuro. The neuro does an exam and interview and diagnoses him with Cyclic Vomiting. No need to treat it because it doesn’t happen THAT often and it doesn’t last very long. No big deal. It’s really just a precursor to migraines, unfortunately for him.

Since we were there, I threw caution to the wind and brought along his other evaluation. Said, “My son is diagnosed with Asperger’s Syndrome and possibly ADHD.” The doctor looked at me and said, “I somehow knew you were going to tell me he had Asperger’s. I knew it the second he walked in here.”(Because he had a nervous breakdown when the nurse took his vitals. Shaking, screaming, banging his ears).  He did say regarding the Asperger’s that he trusted the psych eval, and that we were also going to see a Developmental Pediatrician and they could give a good second opinion. However, he did do an evaluation for and diagnosed him with ADHD. He recommended a very low dose of Ritalin that would last for school only. We said no thank you, it’s preschool and he’s learning and improving. We’ll revisit that later. He said that Jonah is at such an advantage because his cognitive and verbal skills are far above average. That should really help him in the long run. Plus, he’s just an amazing person. But of course I think that, I’m his mom!

So in one day, we got two new diagnoses. I know that ADHD can be comorbid with Autism, but I always thought his ADHD symptoms were just a part of his Asperger’s. I guess we’ll find out at the developmental pediatrician.

So he’s a complicated kid. Every doctor tells us that. We have a lot of work to do. We’ve had to become therapists, behaviorists, OT’s, nutritionists. It’s never ending, but I can tell you that my son is a thousand times better for it. I know that he will benefit from our vigilance.

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1 Comment

Filed under Special Needs, Uncategorized

One response to “New Development….. Two new Diagnoses

  1. God bless you and your family!

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